Categories
NICU Life

One down, two to go.

As the title suggests, we have a baby home now. We were both convinced it’d be Mallory that would come home first. Meanwhile, nurses kept saying it’s always the little ones that seem to pull ahead. Instead, it was Taylor in the middle that hit all her milestones—defying all expectations, which is pretty on-brand for our little family these days.

Taylor shortly after Rachel dressed her up in her homeward bound outfit, and wire-free. The mittens and different-but-similar patterns kind of makes her look like a dork. But hey, she’s a baby, so who cares?

We’re about to find out what all the lack of sleep fuss is about. That should be fun. Of course, once you’ve emotionally prepared yourself for three babies, one sounds kind of easy. The good news is I hear NICU babies are the best sleepers. And boy, if that isn’t the case. She sleeps through everything, plus she’s got a sleep schedule programmed into her. That said, it hasn’t even been a day yet. So, maybe I’ll eat these words. We’ll see.

Another picture of Taylor sleeping
More of Taylor because why not?

In all honesty, the journey out and home was pretty uneventful. They did the discharge, which amounted to some instructions and next steps. Then we put little Taylor in her car seat, and she fell asleep. We loaded up and drove home in our sweet new van (more on that later), she continued to sleep. Once home, we had lunch while she slept. A friend described this part as “paperweight mode,” which was spot on.

How they’re all progressing.

The girls are still holding to their A to C, big to small system religiously. Let’s take a look at some sweet stats.

Mallory escaping her sleep sack once again and getting to work on pulling her tube out. Also, again.

Mallory: 5 pounds, 9 ounces. She’s gained a pound in the last couple of weeks. Actually, spoilers: all of them gained about a pound. She is currently learning to do her bottle feeds with mixed results. That’s basically all that’s holding her back from coming home.

Taylor sleeping (supervised, of course) in a bed thing? It’s like a pillow with an indentation in the middle. She loves it.

Taylor: 5 pounds, 8 ounces. She’s up about a pound as well. She took to bottle-feeding like a champ. She actually finished her first two, fizzled out for a week, then got the hang of it full time. It was an ill-timed brady episode that delayed her arrival home. Otherwise, she would have been home nearly a week ago.

Hannah briefly not laying on her ear.
Little Hannah, pacifier for scale.

Hannah: 4 pounds, 7 ounces. She’s got the spirit but struggles with her bottles. Hannah has also taken to rolling on to her right ear, folding it over. It doesn’t look too bad in the above image, but trust me, it’s getting messed up. Typically it’s straight-up folded in half. They’ve introduced a donut pillow now to keep things in order, and to avoid flat a spot on her head. Luckily the puking has faded somewhat.

NICU vibes.

At this point, the girls are just learning to bottle feed. That is more or less all that’s left. Of course, I think Hannah resets her brady timer every other day. That should be frustrating for her come home status. However, she’s only once finished a bottle. So, it’ll be a minute no matter what.

Mallory, on the other hand, just needs to get her act together and finish her bottles. She’s making progress, but it’s slow progress.

Otherwise, things are pretty chill in the NICU. Turns out the girls are an easy assignment to have. While that’s great for their prognosis and whatnot, it does result in a revolving door of nurses. Every day we get to meet someone new. It’s not a big deal, but it is tough learning a new person’s systems and preferences knowing you’ll just reset tomorrow. On the upside, I now have a wide variety of tricks to use since everyone has their own way of doing things.

Random stuff.

There’s something about the different beds (if you can call them that) that Mallory and Hannah are in. Let’s take a look.

Rolly cart "bassinet" that I could only describe as brutalist industrial
The “rolly cart with a box” model. This is actually a picture of Taylor’s bed. However, it’s identical to Mallory’s except for the “Baby B” label.

So, there’s the bar. Let’s see what Hannah is kicking it in.

Super Premium Deluxe Bassinet 2000!
The super deluxe bassinet. What it lacks in storage it makes up for in futuristic style.

As you can see, the two simply do not compare. Also, those drawers on the rolly carts make the baby flinch every time you close them. Actually they don’t close. They just slide into a groove. Ok, I do understand that the one Hannah is in can tilt. That tilt is needed to reduce spit-ups. But still.

We did our first swaddle bath with Mallory this week. Turns out those are exactly what they sound like. You bathe the baby, but they’re still in a blanket to keep them warm.

The only “cute” picture from the swaddle bath, all the others ranged from pissed looking baby, to very pissed.

Back to that van I mentioned. We went ahead and pulled the trigger on that. Honda Odyssey. It’s a van.

Pictured: ugh.

So, girls, when you’re older and complaining about that lame van…I mean, I’m not saying it’s your fault. But I’m not not saying it’s your fault.

And with that double negative, let’s close this one out and wait for another baby to come home.

Categories
NICU Life

New to being alive.

Infants are adorably bad at everything they do. My personal favorite is when they’re happily sucking on a pacifier (I reject the use of “binky” with every fiber of my being), then for no reason, grab at it and throw it across the bed. Meltdowns and confusion quickly follow.

Hannah Tentatively Accepting Pacifier
Pictured: Me intervening before another pacifier goes flying. Meanwhile, Hannah is taking this opportunity to attempt a feeding tube removal.

Not all of their struggles were quite as adorable at first. If you’re like me, you’ve never heard of a Brady Episode before. By the way, “Brady” is short for Bradycardia. It wasn’t named after someone like I thought for a minute there. Anyway, they’re not supposed to be breathing yet; they’re supposed to be in the womb focusing on kicking their sisters. So, they’ll forget to sometimes. Next thing you know, their heart rate will drop, and alarms start sounding.

Turns out this is super normal, the baby almost always bounces back after a few seconds. If it keeps going, the nurse (or me holding my tiny baby pretending I’m not freaking out about this) will gently prod them. Then they remember that breathing is part of being alive now.

It’s also treated with a steady caffeine dose. Might as well start that habit early, right?

Overall the NICU experience is something you can’t prepare for until you’re living it. You have access to your children, but it’s limited and on someone else’s time. You wait a lot and feel very in the way. Not to say anything negative about the NICU nurses, they are kind and accommodating. They clearly care about what they do and want you to feel comfortable and involved. It’s just tough seeing your tiny newborns through plexiglass, all hooked up to wires. With little red marks all over them from some monitor or tube being moved to distribute irritation. I don’t think they care or even notice, and it’s for their own good. It’s just not where you think the “should we have kids?” conversation will end up taking you.

How are babies?

If you’re better at remembering numbers than me you’ll notice that their weights look a lot like the initial numbers. That’s because they’re back to their birth weights. I didn’t know babies dropped a whole bunch when they come out. Something to do with fluids. So, if you’re like me now you know too. Congrats. Ok, moving on.

Oh, you’ll see a bit of a sleeping theme. Man, do tiny babies sleep a lot. Ok, actually really moving on.

Little Mallory in her basinet
Mallory graduated from an isolation pod to a box on a rolly table.

Mallory: 4lb 7oz, or a lot of grams. I’m American, sorry. Mallory is out of her isopod and is starting to learn how to eat without a tube. Well, I guess just drink for now. It’ll be a while before real eating happens.

Taylor doing that sleeping thing
Taylor doing what she does best, sleep.

Taylor: 4lbs 3oz, or fewer grams than Mallory. She was about to come out of her pod until a little weight dip re-set the timer. She lost just a couple of grams after a spit-up, but that was enough. They have to gain for five days along with maintaining temperature. Otherwise, she’s doing great.

Hannah following the theme established by her sisters. Sleeping away.

Hannah: 3lbs 6oz, or some grams or whatever. The nurses always call her “feisty,” which I can attest to. While being tiny, she’s super alert and always pulling her feeding tube out. She’s taken up puking too.

If you’re wondering what an isopod is, it’s a plexiglass box they stay in. I’m pretty sure to maintain a stable temperature like they’d experience in the womb more than to protect them from germs. Those are managed by washing your hands and using so much hand sanitizer. It’s funny when you hear talk of them learning your smell. I’m pretty sure they think the world and everything in it smells like hand sanitizer.

They all came off breathing assistance super fast, except for Mallory, who was on room air from day one. None of them have IVs anymore. They’re keeping fluids up by eating. Losing IVs was great because that means they get to wear some of those onesies Rachel’s been stockpiling. The oxygen monitors are gone too since that’s been consistently fine. Overall, we’re pretty lucky that they’re so healthy. Which, of course, leads us to the big question…

When do babies come home?

It depends. If there’s one thing I’ve discovered about NICU life, it’s that everything happens in approximations. Holding your baby for a feeding might last 45 minutes, or it could be two hours. She’ll come off her IV tomorrow, or it could be a few days. We’ll start bottle feeding this weekend, or it could be a week. Everything depends on how they’re doing, how they tolerate something, or how quickly they figure something out. There isn’t any set timing on anything. Coming home boils down to some key milestones. There are five of them.

  1. Breathe room air without assistance. Check for all.
  2. Consistently gain weight. Check again for all.
  3. Maintain temperature on their own. Mallory and Taylor are very close. Hannah is still doing her best.
  4. Eat without a tube for 48 hours. No one is quite there. All of them have taken their first steps, success has been scattered.
  5. No Brady Episodes for five days. Everyone is a shit show on that one. It takes a bit for those to go away. I have been told they’ll be taken off caffeine soon. Not actively treating it sounds like a good sign, right?

The very best possible outcome at this moment is one baby coming home in 5 days. Only if that baby nails eating, temperature, and never forgets to breathe. Of course, that’s not likely. They’re just over 33 weeks now, still very premature. For now, we continue to wait.

How are we?

We’re fine. Rachel is through the worst of healing. It’ll be a while before she can take up competitive bodybuilding, though. I’m back to work until at least one baby comes home. Rachel is basically on their schedule now, thanks to pumping. My new hobby is washing pumping parts.

Having them earlier than expected got us moving on prep at least. If we needed to bring a baby home right this moment, we have somewhere to put them, multiple places to change them, and loads of supplies. We even did our “Homeward Bound” class, where I got to breathe into a mannequin through a mask. That’s a silver lining, right?

Extra stuff, observations, and thoughts I couldn’t be bothered to weave into the narrative.

Baby poops are real weird. While I knew about the black tar looking stuff, I was not ready for milk poops. If you actually want to know because you haven’t seen it live, ask me, and buckle up. I have been crapped on already too.

They’re super dramatic about waking up. Lots of big yawns.

They get hiccups all the time. Because of their tiny voices, they sound like little squeaks.

Pulling their feeding tubes out is their favorite pass time apparently.

You don’t know dry hands until you wash and use hand sanitizer every ten seconds.

They’re pretty adorable and precious, we can’t wait to bring them home.